Sunday, July 5, 2009

A little updating

So the doc came in yesterday and informed us that Will is having 3 major tests tomorrow. The first will be a heart Echo and he will be mildly sedated. He won't be able to eat 8 hours prior, so they are putting him on I.V. fluids again tonight to keep him hydrated. I'm sure he hasn't missed that big taped up mess that keeps him from sucking his fingers :) At least he's had a few days to be without it.
They will also be doing the swallow study that we've been pushing for. He'll drink the barium and we'll be able to tell how everything moves inside.
The final test tomorrow (from what we know at least) is a sweat study to check for cistic fibrosis. I guess it can cause growth restriction so they're just covering all their bases.
We're still waiting to hear the results of the organic stool test (it looks for any chemicals from his gut that are signs of gene mutations) since I have the MTHFR.
Everything else has come back NORMAL. Oh, and the last post I said they added Maalox to his regime...my bad, it was Zantac, and it's making a difference! He wanted to eat like a little piggy yesterday!

We had a pretty lazy 4th of July....just played the Wii and mom relieved us for an hour or so and we ran out to get food "off campus". That was nice :) I wanted a Coke Icee from Burger King, and that is precisely what I got :) Billy opted for Pizza Hut pizza and he was satisfied :)
Will wore an adorable festive outfit from Nana and the nurses couldn't help but pat his little booty when they would come to see him. We could kinda see the fireworks, but it's not quite the same when you can't hear them or the background music :( Oh well, maybe next year.

6 comments:

lindsey brooke said...

i didn't see or hear a single firecracker myself yesterday... i did smell them though, driving down the road in the non-air conditioned truck! :)

Anonymous said...

We loved seeing you guys today. We will be praying without ceasing tomorrow. 'Let not your heart grow weary, neither let it grow in vain. Peace I give to you." Sleep momma, cuz you will need rest for tomorrow. Kisses and hugs. love, auntie mary uncle dustin cousin david cousin courtney

KriSTeN said...

We will be praying for little Will. you are such a strong woman, i know that i would be falling apart. i know that God is with all three of you and that your little boy will be just fine! God has him in his Hands.
keep up with the updates, let us know how everything goes... oh and keep on pumping that milk!!!! :)

Nana said...

Yay for baseball and the 4th of July! Praise God that Will has passed all of his scary tests! We're glad he doesn't have anything serious. Now grow Will grow.... we love you.
Nana and Pops

Melissa said...

LOVE his little baseball bootie! :) Hope the tests went well! We're praying and will be waiting for the next update when you get a chance. Glad the Zantac is helping!

Mama PC said...

ready for the next update!!!

post! post!!!

WE LOVE WILL!!!
YES WE DO!!!
JAMIE B AND BILLY TOO!!!